In this episode, Matt hosts patient advocates Julie Johnson (@solongsarcoma) and Katie Coleman (@kaydaustin) to share their experiences and opinions about clinical trials.
We start by discussing how patients find clinical trials and how they might be offered in oncology clinics. Is there a difference when one's oncologist says "There are no trials available" versus "I'm not aware of any trials"? Julie and Katie raise important considerations, especially for patients with rare cancers.
We then discuss their experience with trial finders and how to manage participating in a trial, which may be out of state, many miles from home.
The discussion ends with a challenge for oncology trialists. Why are there not more adjuvant trials in the curative setting? Can we be more thoughtful about the types of trials we run What happens to the patient-participants after trials end?
Certainly there is much to consider.
We hope you enjoy the beginning of our first patient-driven conversation.
Some other things that were mentioned in the show:
Podcast art generously donated by Dr. Danielle Cunningham. Intro and Outro music generously donated by Emmy-award winning artist Lucas Cantor Santiago.
The Accelerators Podcast is a Photon Media production.